ausEE Inc. supports research by sharing opportunities to participate in research studies that people may be eligible for through our member/supporter newsletter, social media and website.
Current opportunities
EoE Research Survey
Researchers from the University of Wollongong invite you to take part in an online survey to explore your experiences and needs of living with Eosinophilic Oesophagitis (EoE) or caring for someone with EoE. Help raise awareness and inform the development of future resources and supports for individuals with EoE.
Who can participate in the research?- Adults aged ≥ 16 years OR Carers of children (< 16 years) - Diagnosed with EoE
What does participation involve?- Click the link for your age group and complete the online survey - The survey will ask you to complete questions about your background, diagnosis, treatment experience and quality of life- Your answers will be anonymous, and you will not be identifiable from the answers you give- Participation is voluntary and you can withdraw at any time and do not have to share any information you are uncomfortable sharing- The survey will take approximately 20 mins to complete
If you would like more details or have any questions about this study contact: Annabel Clancy, Chief Investigator, aclancy@uow.edu.au
The University of Wollongong Ethics Committee has approved this study. If you have any complaints or concerns about this research you can contact the UOW Ethics Officer via email at uow-humanethics@uow.edu.au or on +61 2 4239 2080.
Survey for >16yearsSurvey for Carers < 16 years
Who can participate in the research?- Adults aged ≥ 16 years OR Carers of children (< 16 years) - Diagnosed with EoE
What does participation involve?- Click the link for your age group and complete the online survey - The survey will ask you to complete questions about your background, diagnosis, treatment experience and quality of life- Your answers will be anonymous, and you will not be identifiable from the answers you give- Participation is voluntary and you can withdraw at any time and do not have to share any information you are uncomfortable sharing- The survey will take approximately 20 mins to complete
If you would like more details or have any questions about this study contact: Annabel Clancy, Chief Investigator, aclancy@uow.edu.au
The University of Wollongong Ethics Committee has approved this study. If you have any complaints or concerns about this research you can contact the UOW Ethics Officer via email at uow-humanethics@uow.edu.au or on +61 2 4239 2080.
Survey for >16yearsSurvey for Carers < 16 years
Oral Health in Tube Feeding Research
Have you heard about the opportunity to be part of a research study looking at oral health in long term enteral feeding?
Researchers from the Royal Brisbane and Women’s Hospital and University of Queensland are undertaking a study seeking to better understand oral health for people who are tube fed and to identify ways healthcare services can provide better support in the future.
You may be eligible to take part if you or the person you care for are: - 18 years or older, - have been receiving tube feeding outside of hospital for at least three months, and- live in Australia.
Taking part involves completing a one-off on-line or paper-based questionnaire that will take about 20-30mins to complete.
If you’re interested in taking part more information and the online survey can be found at https://redcap.link/tubefeedoralhealth. To receive a paper copy of the study materials or for any questions you have about the study, you are invited to contact Emma.Osland@health.qld.gov.au
You may be eligible to take part if you or the person you care for are: - 18 years or older, - have been receiving tube feeding outside of hospital for at least three months, and- live in Australia.
Taking part involves completing a one-off on-line or paper-based questionnaire that will take about 20-30mins to complete.
If you’re interested in taking part more information and the online survey can be found at https://redcap.link/tubefeedoralhealth. To receive a paper copy of the study materials or for any questions you have about the study, you are invited to contact Emma.Osland@health.qld.gov.au
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Taste Matters: Evaluating Flavour Acceptability in Oral Liquid Medicines
Researchers from the University of Newcastle are seeking potential participants for their research project ‘Taste Matters: Evaluating Flavour Acceptability in Oral Liquid Medicines’. This research aims to find out which flavours different people like. This will help them choose better flavours for liquid medicines taken by mouth, so they taste nicer and are easier and more pleasant to take.
Who can participate in the research?- This research study invites participants, aged 12 years and older, to complete a survey.- People can take part whether or not they have any health conditions.- People who cannot participate include those who are younger than 12 years. What does participation involve?- To participate, click the link for your age group (18+ years or 12–17 years) and complete the online survey.- The survey will ask you to complete 10 questions about your background, medication experience, and medication flavour preferences.- Your answers will be anonymous; you will not be identifiable from the answers you give.- The survey should take approximately 2 to 5 minutes to complete. Survey for ages 18+Survey for ages 12 to 17
If you would like more information on this study of have any questions, please contact: Professor Susan Hua (Chief Investigator)susan.hua@newcastle.edu.au
Who can participate in the research?- This research study invites participants, aged 12 years and older, to complete a survey.- People can take part whether or not they have any health conditions.- People who cannot participate include those who are younger than 12 years. What does participation involve?- To participate, click the link for your age group (18+ years or 12–17 years) and complete the online survey.- The survey will ask you to complete 10 questions about your background, medication experience, and medication flavour preferences.- Your answers will be anonymous; you will not be identifiable from the answers you give.- The survey should take approximately 2 to 5 minutes to complete. Survey for ages 18+Survey for ages 12 to 17
If you would like more information on this study of have any questions, please contact: Professor Susan Hua (Chief Investigator)susan.hua@newcastle.edu.au
Other opportunities to participate in research
EGID Partners
EGID Partners is an online cohort of patients with eosinophilic gastrointestinal diseases (EGIDs) brought to you in a collaboration between Patient Advocacy Groups and Researchers.
EGID Partners engages patients to help guide research. People without EGIDs are also encouraged to join so data can be compared. Together we can advance the care of conditions like eosinophilic esophagitis (EoE), eosinophilic gastritis (EoG), and eosinophilic colitis (EoC). ausEE Inc. is proud to be a patient advocacy group partner of EGID Partners.
Visit egidpartners.org to learn more and to become a Partner!
EGID Partners engages patients to help guide research. People without EGIDs are also encouraged to join so data can be compared. Together we can advance the care of conditions like eosinophilic esophagitis (EoE), eosinophilic gastritis (EoG), and eosinophilic colitis (EoC). ausEE Inc. is proud to be a patient advocacy group partner of EGID Partners.
Visit egidpartners.org to learn more and to become a Partner!
Rare Patient Voice
Are you a patient or family caregiver with something to say?
Make your voice heard by participating in paid surveys, interviews and online communities!
Start talking to the right people. It's free!
ausEE Inc. is a referral partner of Rare Patient Voice and we will receive a $10 contribution for every eligible person who signs up through this referral link.
