Participate in Research
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EoE Research Survey
Researchers from the University of Wollongong invite you to take part in an online survey to explore your experiences and needs of living with Eosinophilic Oesophagitis (EoE) or caring for someone with EoE. Help raise awareness and inform the development of future resources and supports for individuals with EoE.
Who can participate in the research? - Adults aged ≥ 16 years OR Carers of children (< 16 years) - Diagnosed with EoE What does participation involve? - Click the link for your age group and complete the online survey- The survey will ask you to complete questions about your background, diagnosis, treatment experience and quality of life- Your answers will be anonymous, and you will not be identifiable from the answers you give- Participation is voluntary and you can withdraw at any time and do not have to share any information you are uncomfortable sharing- The survey will take approximately 20 mins to complete If you would like more details or have any questions about this study contact: Annabel Clancy, Chief Investigator, aclancy@uow.edu.au The University of Wollongong Ethics Committee has approved this study. If you have any complaints or concerns about this research you can contact the UOW Ethics Officer via email at uow-humanethics@uow.edu.au or on +61 2 4239 2080.
Who can participate in the research? - Adults aged ≥ 16 years OR Carers of children (< 16 years) - Diagnosed with EoE What does participation involve? - Click the link for your age group and complete the online survey- The survey will ask you to complete questions about your background, diagnosis, treatment experience and quality of life- Your answers will be anonymous, and you will not be identifiable from the answers you give- Participation is voluntary and you can withdraw at any time and do not have to share any information you are uncomfortable sharing- The survey will take approximately 20 mins to complete If you would like more details or have any questions about this study contact: Annabel Clancy, Chief Investigator, aclancy@uow.edu.au The University of Wollongong Ethics Committee has approved this study. If you have any complaints or concerns about this research you can contact the UOW Ethics Officer via email at uow-humanethics@uow.edu.au or on +61 2 4239 2080.
Clinical Research Study
Still struggling to swallow despite avoiding dense foods?
If you have a confirmed Eosinophilic Oesophagitis (EoE) diagnosis and are between 18-70 years old, you may be eligible to take part in a new clinical research study.
A new Phase 1b clinical research study evaluating an investigational study drug for adults with EoE is now enrolling in Australia.
The study is designed to learn more about the safety and potential effects of this investigational therapy.
If the study is suitable for you and you choose to participate, you will receive study-related care from experienced clinical research professionals at no cost.
By taking part, participants may help advance research that could inform future care for people living with EoE.
You may be eligible if you
- Are 18 to 70 years old - Have a confirmed diagnosis of EoE Other eligibility criteria will apply.
About the study
- The study lasts about 38 weeks, including up to 6 weeks for screening- Participants may receive up to 6 doses of the study drug or placebo - Participants will receive ongoing health assessments and upper endoscopies with biopsies- Participants will answer questions related to symptoms and quality of life
Australian study locations
Taking part in a clinical trial is a personal decision. To learn more about this study, please contact the study location by email.
Melbourne:St Vincent’s Hospital Melbourne - rosemary.sloane@svha.org.auEastern Health - emma.dimitri@monash.edu and sasha.trantino@monash.edu
Woolloongabba:Princess Alexandra Hospital - teressa.hansen@health.qld.gov.au
Woolloongabba:Princess Alexandra Hospital - teressa.hansen@health.qld.gov.au
Oral Health in Tube Feeding Research
Have you heard about the opportunity to be part of a research study looking at oral health in long term enteral feeding?
Researchers from the Royal Brisbane and Women’s Hospital and University of Queensland are undertaking a study seeking to better understand oral health for people who are tube fed and to identify ways healthcare services can provide better support in the future.
You may be eligible to take part if you or the person you care for are: - 18 years or older, - have been receiving tube feeding outside of hospital for at least three months, and- live in Australia.
Taking part involves completing a one-off on-line or paper-based questionnaire that will take about 20-30mins to complete.
If you’re interested in taking part more information and the online survey can be found at https://redcap.link/tubefeedoralhealth. To receive a paper copy of the study materials or for any questions you have about the study, you are invited to contact Emma.Osland@health.qld.gov.au
You may be eligible to take part if you or the person you care for are: - 18 years or older, - have been receiving tube feeding outside of hospital for at least three months, and- live in Australia.
Taking part involves completing a one-off on-line or paper-based questionnaire that will take about 20-30mins to complete.
If you’re interested in taking part more information and the online survey can be found at https://redcap.link/tubefeedoralhealth. To receive a paper copy of the study materials or for any questions you have about the study, you are invited to contact Emma.Osland@health.qld.gov.au
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