ausEE Inc. is the national support and patient advocacy organisation representing Australians affected by an eosinophil-associated disease (EAD).
We extend our support and advocacy to people in New Zealand and their whānau.
We are a registered Australia wide charity whose mission is to improve the lives of those affected by eosinophilic diseases by providing support, evidence-based information, resources, and advocacy, and by campaigning to raise awareness and funds for research in Australia. Additionally, we support anyone who requires tube feeding, regardless of their diagnosis or disability. Eosinophilic gastrointestinal diseases (EGIDs) are among the many conditions that may require tube feeding to meet nutritional needs. Our Feeding Tube Aware campaign raises awareness, shares information and resources, and fosters support and connections to help unite the tube feeding community.
Donations to ausEE Inc. over $2 are tax deductible. All donations received will help us to achieve our mission. Please Donate here. Eosinophils (pronounced ee-oh-sin-oh-fills) are a type of white blood cell that play a role in certain medical conditions and immune responses. When someone has too many eosinophils in their blood, tissues, organs, or digestive system, without another known cause, they may have an eosinophil-associated disease (EAD). In these conditions, eosinophils can build up and cause inflammation and tissue or organ damage. There are different types of EADs, and diagnosis usually depends on where in the body the eosinophils are found and what symptoms a person has. Learn more...
We are a registered Australia wide charity whose mission is to improve the lives of those affected by eosinophilic diseases by providing support, evidence-based information, resources, and advocacy, and by campaigning to raise awareness and funds for research in Australia. Additionally, we support anyone who requires tube feeding, regardless of their diagnosis or disability. Eosinophilic gastrointestinal diseases (EGIDs) are among the many conditions that may require tube feeding to meet nutritional needs. Our Feeding Tube Aware campaign raises awareness, shares information and resources, and fosters support and connections to help unite the tube feeding community.
Donations to ausEE Inc. over $2 are tax deductible. All donations received will help us to achieve our mission. Please Donate here. Eosinophils (pronounced ee-oh-sin-oh-fills) are a type of white blood cell that play a role in certain medical conditions and immune responses. When someone has too many eosinophils in their blood, tissues, organs, or digestive system, without another known cause, they may have an eosinophil-associated disease (EAD). In these conditions, eosinophils can build up and cause inflammation and tissue or organ damage. There are different types of EADs, and diagnosis usually depends on where in the body the eosinophils are found and what symptoms a person has. Learn more...
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On an elimination diet?
Participate in Research
EoE Research Survey
Researchers from the University of Wollongong invite you to take part in an online survey to explore your experiences and needs of living with Eosinophilic Oesophagitis (EoE) or caring for someone with EoE. Help raise awareness and inform the development of future resources and supports for individuals with EoE.
Who can participate in the research? - Adults aged ≥ 16 years OR Carers of children (< 16 years) - Diagnosed with EoE What does participation involve? - Click the link for your age group and complete the online survey- The survey will ask you to complete questions about your background, diagnosis, treatment experience and quality of life- Your answers will be anonymous, and you will not be identifiable from the answers you give- Participation is voluntary and you can withdraw at any time and do not have to share any information you are uncomfortable sharing- The survey will take approximately 20 mins to complete If you would like more details or have any questions about this study contact: Annabel Clancy, Chief Investigator, aclancy@uow.edu.au The University of Wollongong Ethics Committee has approved this study. If you have any complaints or concerns about this research you can contact the UOW Ethics Officer via email at uow-humanethics@uow.edu.au or on +61 2 4239 2080.
Who can participate in the research? - Adults aged ≥ 16 years OR Carers of children (< 16 years) - Diagnosed with EoE What does participation involve? - Click the link for your age group and complete the online survey- The survey will ask you to complete questions about your background, diagnosis, treatment experience and quality of life- Your answers will be anonymous, and you will not be identifiable from the answers you give- Participation is voluntary and you can withdraw at any time and do not have to share any information you are uncomfortable sharing- The survey will take approximately 20 mins to complete If you would like more details or have any questions about this study contact: Annabel Clancy, Chief Investigator, aclancy@uow.edu.au The University of Wollongong Ethics Committee has approved this study. If you have any complaints or concerns about this research you can contact the UOW Ethics Officer via email at uow-humanethics@uow.edu.au or on +61 2 4239 2080.
Oral Health in Tube Feeding Research
Have you heard about the opportunity to be part of a research study looking at oral health in long term enteral feeding?
Researchers from the Royal Brisbane and Women’s Hospital and University of Queensland are undertaking a study seeking to better understand oral health for people who are tube fed and to identify ways healthcare services can provide better support in the future.
You may be eligible to take part if you or the person you care for are: • 18 years or older, • have been receiving tube feeding outside of hospital for at least three months, and• live in Australia.
Taking part involves completing a one-off on-line or paper-based questionnaire that will take about 20-30mins to complete.
If you’re interested in taking part more information and the online survey can be found at https://redcap.link/tubefeedoralhealth. To receive a paper copy of the study materials or for any questions you have about the study, you are invited to contact Emma.Osland@health.qld.gov.au
You may be eligible to take part if you or the person you care for are: • 18 years or older, • have been receiving tube feeding outside of hospital for at least three months, and• live in Australia.
Taking part involves completing a one-off on-line or paper-based questionnaire that will take about 20-30mins to complete.
If you’re interested in taking part more information and the online survey can be found at https://redcap.link/tubefeedoralhealth. To receive a paper copy of the study materials or for any questions you have about the study, you are invited to contact Emma.Osland@health.qld.gov.au
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ausEE Inc.PO Box 9923Frenchville Qld 4701